[Osdc-edu-authors] Article Heads Up
Jason Hibbets
jhibbets at redhat.com
Fri Nov 4 21:45:53 UTC 2011
Remy,
Thank you very much! I've assigned this to an editor. Fabulous job. We
really appreciate contributions like this.
Regards,
Jason
Remy DeCausemaker wrote:
> Here is a *very* rough draft... I am about to start another event, so I
> can't put anymore cycles into this right now. The exciting news is that
> Todd Park is very interested participating in a Hackathon at RIT
> partnering with health2challenge.org <http://health2challenge.org> and
> challenge.gov <http://challenge.gov>! Today was a great day, and here is
> a decent transcript. I've got maybe another 10 mins to edit, but for the
> most part I'm leaving this in capable hands of our editors.
>
> hearts and minds,
> --RemyD.
>
> P.S. - The osdctoddpark-draft.html file is the actual draft, and the
> osdctoddpark.html is the draft with my raw notes at the bottom.
>
> On Fri, Nov 4, 2011 at 2:35 PM, Mary Bitter <mbitter at redhat.com
> <mailto:mbitter at redhat.com>> wrote:
>
> +1. This is super!
>
> On 11/04/2011 12:09 PM, Jason Hibbets wrote:
> > Remy,
> >
> > This is great. We did a webcast with Todd Park in July. It would be
> > awesome to have an article with your thoughts on his presentation
> today.
> >
> > Let me know if you need any help. Feel free to send anything directly
> > to me so that we can expedite this.
> >
> > Thanks,
> > Jason
> >
> > Remy DeCausemaker wrote:
> >> All,
> >>
> >> I'm at the Syracuse Tech Garden right now, about to watch Todd Park,
> >> CTO of US Dept. of Health and Human Services give a presentation
> >> titled "Unleashing the Power of Data, IT, and Innovation to improve
> >> Health." Incase this fella isn't on your radar, check his bio here:
> >> http://www.hhs.gov/open/discussion/todd_park_bio.html
> >>
> >> I have caught this guy on CSPAN dropping Open Source and O'reily, so
> >> I know he "gets it." I will be taking notes, and probably put
> >> together a post. It would probably be a good fit for the Gov
> Channel.
> >>
> >> I'll keep you posted,
> >> --RemyD.
> >>
> >> --
> >> --
> >> Remy DeCausemaker
> >> Research Associate
> >> Lab for Technological Literacy
> >> http://foss.rit.edu <http://foss.rit.edu/>
> >>
> >> Rochester Institute of Technology
> >> Center for Student Innovation
> >> 159 Lomb Memorial Drive
> >> Building 87-1680
> >> Rochester, NY 14623
> >
>
>
>
>
> --
> --
> Remy DeCausemaker
> Research Associate
> Lab for Technological Literacy
> http://foss.rit.edu <http://foss.rit.edu/>
>
> Rochester Institute of Technology
> Center for Student Innovation
> 159 Lomb Memorial Drive
> Building 87-1680
> Rochester, NY 14623
>
> ------------------------------------------------------------------------
>
> Title: New Incentives + Information Liberation = Rocket Fuel for
> Innovation & Progress Every time I come to The Syracuse
> <http://thetechgarden.com> Tech Garden
> <http://twitter.com/thetechgarden> there is always something new and
> exciting happening. Today, I will have the privilege of watching Todd
> Park <http://twitter.com/todd_park>, Cheif Technology Officer of the
> U.S. Department of Health and Human Services <http://www.hhs.gov/open>
> speak to the Upstate community about "Unlocking the Power of Data, IT,
> and Innovation to Improve Health." Todd Park first got onto my radar one
> very late night when I was trolling CSPAN around 4am. It was the first
> time I had heard personally heard the words "Open Source" mentioned on
> CSPAN, and I was more than excited to see the genuine article. Mr. Park
> did not disappoint. "We started this conversation at SXSW
> <http://sxsw.com> and I'm just hearing about all of the things happening
> in Health and Entrepreneurship in Upstate NY," began Park. "I don't want
> this to be a formal "Speechification process" so let me start with a few
> questions:"
>
> * Who here has a background in HealthCare?
> * Who here has a background in Health Care Management or Administration?
> * Who here has a background in IT or Data?
> * Who here is a Student?
> * Who here is an Entrepreneur?
> * Who here is a Technologist or Developer?
> * Who here is a Researcher?
> * Who here is a Doctor or Nurse?
> * Who here has a background in HealthCare?
>
> After seeing a forest of hands be raised, sometimes by the same person
> for multiple categories, Park proclaimed "You are all in the sweet spot.
> There has never been a better time to be an innovator in Health and IT."
> Park says there are two trends that have really been locking in: Shifts
> in incentives, and information liberation.
>
>
> New Incentives: Meaningful Use
>
> Medicaid and Medicare are paying $40-60K to physicians to improve data
> capture and sharing, as well as outcome sharing through 2015. 100,000
> providers have registered with HHS. While this is an exciting
> development according to Park, it is just the warm-up for rewarding the
> use of data and IT.
>
>
> Payment Reform: Affordable Care Act
>
> Historically, the payment system focused on a 'pay per visit' or 'pay
> per procedure' model. Lots of people would say this is dysfunctional,
> but I would say the system was doing what it was designed to do. We need
> to shift from pay for volume, to pay for keeping people healthy. This is
> being emulated across the private sector. Our biggest game changer, is
> the Center for Medicare and Medicaid Innovation (CMSI). If you care
> about this, this is the most important thing: go find out more about the
> innovation center at http://innovation.cms.gov
> <http:innovation.cms.gov>. This is a new center funded at $10 Billion to
> execute R&D on how CMS can pay for ways to improve costs and health.
> Most important is not the $10 Billion, but an obscure clause that says
> that if there is a new way to pay for care, if that is born out in data,
> the CMS office of the actuary's Secretary of Health and Human Services,
> has the authority to turn that into how CMS pays nationally. This is an
> objective scientific process to incentivize health care improvement. CMS
> has never had the authority to decide how it pays for care before in an
> objective and open process.
>
>
> Why is this exciting?
>
> If you look at patient centered medical homes, they take responsibility,
> reach out, and save complications and years in the hospital. It both
> educates AND takes care of you. This is what primary care physicians
> have wanted, but have been inhibited by costs. New care delivery teams
> and networks are emerging. We are moving past seeing more people and
> more rapidly (pay per volume), and expanding to proactive health patient
> optimization. People are analyzing information, and expanding the scope
> to include care coordination.
>
> *5% of patients account for 40% of medicare costs!*
>
> You've got to expand beyond the walls of the office, at home, and help
> doctors realize they have to come in. That notion of proactive patient
> health management, and engaging outside of the office will need to be
> done to succeed financially in the future. From a technology standpoint,
> how you do this can't be without data, and timely data, to integrate
> care. The ability to engage is based on datamining and analytics. This
> won't be just a 'ctrl+c, ctrl+v' process, but no new technology has to
> be invented, we just need to take lessons from other industries and
> apply it.
>
> * In a nutshell, this is an opportunity to reinstrument healthcare
> systems, and is the greatest entrepreneurial opportunity since the
> creation of the internet. This is a $3 Trillion industry*
>
>
> Information Liberation: rising patient data liquidity
>
> This is happening at multiple levels, but it does us little good if we
> move to electronic records, and patient data can't move from provider to
> provider. We need to turn manilla into electronic, but the data needs to
> move with the patient.
>
>
> The direct project
>
> Park told us a story about an email from a doctor that he received. The
> doctor said
>
> "I have a record for a patient, and that patient is going to another
> doctor. We have the same record, from the same company, but all I
> can do is print the record and fax it to the other doctor. I didn't
> think, and I emailed the record to the other doctor, and I
> understand now this is bad... Please help me with the basic
> networking problem."
>
> Park told that doctor that "we can help you, but we don't know the
> answer." In prior years, Park says in the past, the typical answer would
> have been "we'll appoint a commission, and come out 8 months later with
> an answer." We told him, says Park "We're confident we can crowd source
> a solution." An entrepreneur then opened a wiki, and within less than 3
> months, HHS had a spec for secure health record emailing.
>
>
> BlueButton
>
> Another intresting project mentioned by Park was Blue Button
> <http://va.gov/bluebutton> launched by The Department of Veteran Affairs
> <http://va.gov>. This project enables veterans and military personnel to
> press a button and download their own health data. They didn't think it
> would be a big deal, and projected that 25,000 veterans would use the
> download service. Today, over 450,000 veterans and military personnel
> have downloaded their own data. We got calls from people within
> government asking "We're allowed to do that?" We said "yes," and it is
> infact legal. The fact that we did it sends a strong signal.
> Organizations like AETNA and United Health, as well as the States of
> Indiana and Vermont are now doing this same thing. BlueButtonData.org
> <http://bluebuttondata.org> explains how to do it, and where you can
> commit to joining the movement. HHS also announced a new clear rule in
> September to allow patients to get their own test results from
> laboratories!
>
>
> Increasing Market Transparency
>
> "What defines a market?" asks Park to the audience. "When a customer
> knows what choices there are, know their value, and can make choices. If
> this is a market, has healthcare really been a market before? Not so
> much, so we bring transparency. July 1st we launched Healthcare.gov
> <http://healthcare.gov>, which provides detailed vendor information for
> insurance, down to the zipcode level. This is important, and delivers
> better results."
>
>
> Health Data Initiative
>
> "This is something we are really excited about. Launched 20 months
> ago, this will turn us into the NOAA <http://noaa.gov> of health
> data!" proclaimed Park. The National Oceanographic and Atmospheric
> Association (NOAA) collects all weather data, and chooses to publish
> all the data in machine readable Free formats, for free. This has
> spawned innovation in private sector (the weather channel, apps,
> websites, etc...) and is a wonderful example of a symbiotic
> public/private relationship." When president Regan liberated GPS
> data, it paved the way for innovations like foursquare and others.
> *Take billions of dollars of data, and make it into fuel--open
> computable fuel--that entrepreneurs can turn into magic that help
> patients and doctors."* PDF's and books are useless. We're making
> API's and machine readable data. We also realized that 98% of
> innovators have no idea we had this data, and I've been marketing
> the bejeebus out of it all over the country."
>
> Park then went on to answer the question "What kinds of data are we
> liberating?" with the following list:
>
> * Community Health
> o 1200 metrics and indicators of performance at the national,
> regional, state, and local levels. (i.e. smoking and obesity
> rates)
> * Provider Directories
> o Medicare/Medicaid numbers, mental health providers,
> community health centers, meals-on-wheels, counselling,
> hospital quality, home quality, and many others. We've added
> API's for this to allow developer to link to and extract data.
> o Section 10332 is a provision that allows Medicare to make
> available detailed files to qualified private organizations
> and do research. This program will go live January of 2012.
> * BlueButton
> * FDA Recall Data
> * All products of healthcare.gov as a single downloadable file
> * National Library of Medicine <http://nlm.gov>
> o Clinical Trials
> o pillbox - API for a growing repository of tablets with pictures
> * Medline Plus - ecyclopedic information
> * Medical Connect - patient content broken down into individual
> diagnosis and drugs, that spits back an .xml package
> * Government Spending
> *
> * Claim files publicly available
> o Claim files have been redacted to ensure that data can not
> be rejoined with other datasets later
>
> "To track all of this, we have one site Healthdata.gov
> <http://healthdata.gov>; a one stop shop for all of our data. It is
> controlled access, so the blue button data is not here for example, but
> all of the FOIL-able data is catalogued on Data.gov <http://data.gov>.
>
>
> We publicize the heck out of our data
>
> * Health2Challenge.org <http://health2challenge.org>
> "Any company can launch a competition or code-a-thon, and I highly
> recommend going to one if you haven't yet. We've had several
> organized by health2challenge" explained Park, and then went on to
> describe one held at Georgetown University <http://georgetown.edu>
> where a team of Pittsburg students drove down and won the
> code-a-thon with their project "Food Oasis."
>
> Food deserts are places in America where you cannot get access
> to healthy food. They decided to solve this problem in eight
> short hours. They did a mashup of text messages and farmer's
> markets. You text in 'I want 5 zucchini and 3 tomatoes" and
> the app will notify you of farmer's markets. They are testing
> in 7 cities, and I don't know if that idea, in that form will
> work, but it is their first. *What is exciting is that these 5
> kids are now addicted to leveraging data to help.*
>
> I've founded many companies, but I've divested since. The
> thing I've learned is if you get the best people, you win.
> If you attract all of the best innovators in America into
> Healthcare, we can invent our way out of any problem.
>
> * Annual Health-data-palooza
> "Hosted by Secretary of HHS, our 2nd annual event will be June
> 9th. These are large scale festivals, open invitations to
> anyone who uses our data to help doctors, patients, or
> journalists. They also have to have a sustainable business
> model, (i.e. they can't try to show off a concept car that
> will never be built) and they have to be able to deliver to
> actual people. This is only 20 months old, and has tough
> criteria, but even so, we had more people than were able to
> fit into our auditorium. We then did an 'American Idol' style
> virtual event, with judges to narrow down the field to the
> best 50. What I would say, if your faith is wavering in
> America, go to the Institute of Medicine website, search for
> 'health data initiative forum' and watch as many videos as
> possible. Let me describe a few:"
> o itriage
> + A company out of Denver, CO that makes powerful
> mobile and web tools. Early on, they took our
> directory and put it into their app. They now have
> 65 employees, over 3 million users, and they were
> just bought by AETNA, who is investing tons of
> capital for them to expand.
> o Healthline
> + Useful for healthsearch. If you have ever googled
> for heath advice, you know how dangerous it can
> be. Healthline ingests huge amounts of government
> dat, to make healthsearch more viable and accurate
> o Vitals.com
> o Shopping services for consumers to know quality and
> costs. PatientsLikeMe.com
> 120,000 patients voluntarily sharing information about
> their illness, which is integrated with clinical trails
> o data. They won datapalooza. Asthmapolis
> Single person team, a CDC <http://cdc.gov> veteran.
> Simple and brilliant idea to attach a GPS to an inhaler,
> to track where you have attacks. 80 patients tested it,
> and after several months, their usage of an inhaler more
> than 2 times per week dropped from 75% to 40%. This cuts
> costs by $3,000 per person. These were unscientific
> tests, with a small amount of people, but it is
> attracting a number of Angel Investors. Imagine doctors
> prescribing an asthmapolis device!
>
>
> Care providers providing better care
>
> o AETNA
> Cool app rollout, it wasn't even an app, but a nurse.
> Nurse 2.0. They built an IT cockpit for nurses, to help
> nurses help people better. Imagine a call center nurse,
> assigned to a patient with multiple illnesses.
> Demonstrated how a nurse can pull up various pieces of
> government data, to be a more omniscient care provider.
> 'Here are the nearest community health centers' and
> other data customized to help each patient, delivered
> through the most effective user interface: talking to
> another human being. Application of data is at any level
> that helps people make better decisions to improve
> o health and healthcare. Doximity
> They use government data to build a GPS map of all
> providers in America. You can use that data set, as a
> doctor, to figure out who to refer patients to, and even
> o integrates text messages. Essence Group/Lumaris
> o Press Ganey
> o Rise Health
> o ElizaLIVE
>
>
> Communities Improving Healthcare
>
> o Ozioma
> Built by a team of University of Washington St. Louis
> students, it is virtually free for bloggers and
> journalists. It takes 98% of the work out of raising
> public awareness. Journalists can't afford their own
> health services researchers, and Ozioma directly
> categorizes stories about disparities in health to help
> mobilize action.
>
> HHS didn't pay for, or coordinate any of this stuff.
> We just put out data, publicize it, and folks like
> you dive in and kick butt! You leverage your talent
> and build amazing stuff. In just these 50
> innovations, no one or even ten companies could not
> have /thought of/ all of these ideas, let alone
> /built them/.
>
> o Walgreens
> announced they are going to install people to be "health
> guides," or free health concierges. Walgreens wanted to
> build an IT cockpit for these guides, so they issued a
> challenge and got 50 submissions in about 90 days, and
> chose one startup to equip them. The first 16
> o installations are happening in Chicago as we speak.
> Startup Health
> A combination of a seed accelerator and incubator, they
> will help start 100 companies over the next 10 years.
> Venture Capitalists are very efficient, but incubation
> systems for healthcare companies is very hap-hazard.
> Organizations like Startup Health, fill this gap, and
> help startups find support, through a rolling
> o applications process. Health Data Consortium
> Launched as a new private/public partnership through the
> Robert Wood Johnson Foundation <http://rwj.org>, they
> have hired a small cadre of health data evangelists.
> These are the Johnny and Jane Appleseeds of Open Data
> who walk the ground, run datapalooza, and expand the
> scope and breadth of health data.
>
> Our goal is to not only expand the data, but catalyze the
> ecosystem of innovators who will create the jobs of the
> future. I'd love to get to know you, and see how we can
> help you. If we can't connect here, please contact me at
> todd.park at hhs.gov <mailto:todd.park at hhs.gov>
>
> Q: What are you thinking about when you say we have
> all the technology?
> A: I didn't mean that electronic health records can do
> all this, or that healthcare itself has all the tech.
> In the world in general, the tools exist, and it is
> feasible to be applied. Has it been done yet? No.
>
> Q: Is location based data like asthmapolis being
> shared with city planners and other public officials?
> A: Patients have to opt-in, but they have done some
> preliminary work like this, crowdsourced at the
> community level and combined with sensor data.
>
> Q: How do you like working in the biggest bureaucracy
> in the world?
> A: I love it. I can't get enough of it. I don't have a
> background in government, and when they contacted me,
> I said 'I don't know anything about politics or
> government' and they said 'Great! It's an entrepreneur
> in residence position to lead big initiatives' If you
> work in the Federal Government, and you have an idea,
> here is my advice; Find 3 or 5 other people who had
> the idea a long time ago, who know how goverment
> works, and stitch them together in a virtual startup
> team. Give them permission to do the things they want
> to do, and things rapidly get done.
>
> The thing that distinguishes top entrepreneurs is they
> /believe/ in what htey are building. Leaving a legacy.
> Leaving their mark. Making the lives of their
> grandkids better. That is what is required to deal
> with the craziness and to make change, in the public
> or private sector.
>
> Q: What would happen if we were to innovate our way
> into a more proportionate amount of GDP into "per
> patient services?"
> A: People talk about going from that 2.5 to 1.5
> (trillion dollars), and they talk about changing
> growth rate. I don't have a problem with spending 20,
> 30, 40 percent on healthcare. What I do have a problem
> with is large portions of that spending being wasted.
> It is up to society to decide how much to spend on
> healthcare. Nobody thinks we are getting our money's
> worth. I talk to primary care doctors, and ask "can we
> get more for what we spend?" The laugh and say "of
> course, but our system is not geared toward keepign
> people healthy." I focus on return on investement.
>
> Q: What is the process for our students at RIT and the
> Upstate Community to participate in one of the
> hackathons you mentioned?
> A: I have 2 anwers: 1) go to health2challenge.org and
> challenge.go and you can see the challenges happening
> all over. 2) If you want to do your own, we'd love to
> help. We can collaborate with you, and I'd love to
> come if I can.
>
> One thing we have learned from running these kinds of
> events is that you need both IT/Data/Dev folks AND
> healthcare folks in the same room. Otherwise devs
> spend time learning basic things. That intersection is
> important, if schools of public health and medicine
> got involved, it could be very interesting.
>
> Q: What is your fundamental message?
> A: Never has there been a better time to start a
> company at the intersection of data, health, and IT.
> Information is being liberated at an epic scale.
>
> *Never has there been a better time to start a
> company at the intersection of data, health, and
> IT. Information is being liberated at an epic scale.*
>
>
> ------------------------------------------------------------------------
>
> Title: New Incentives + Information Liberation =
> Rocket Fuel for Innovation & Progress Every time I
> come to The Syracuse <http://thetechgarden.com> Tech
> Garden <http://twitter.com/thetechgarden> there is
> always something new and exciting happening. Today, I
> will have the privilege of watching Todd Park
> <http://twitter.com/todd_park>, Cheif Technology
> Officer of the U.S. Department of Health and Human
> Services <http://www.hhs.gov/open> speak to the
> Upstate community about "Unlocking the Power of Data,
> IT, and Innovation to Improve Health." Todd Park first
> got onto my radar one very late night when I was
> trolling CSPAN around 4am. It was the first time I had
> heard personally heard the words "Open Source"
> mentioned on CSPAN, and I was more than excited to see
> the genuine article. Mr. Park did not disappoint. "We
> started this conversation at SXSW <http://sxsw.com>
> and I'm just hearing about all of the things happening
> in Health and Entrepreneurship in Upstate NY," began
> Park. "I don't want this to be a formal
> "Speechification process" so let me start with a few
> questions:"
> o Who here has a background in HealthCare?
> o Who here has a background in Health Care
> Management or Administration?
> o Who here has a background in IT or Data?
> o Who here is a Student?
> o Who here is an Entrepreneur?
> o Who here is a Technologist or Developer?
> o Who here is a Researcher?
> o Who here is a Doctor or Nurse?
> o Who here has a background in HealthCare?
> After seeing a forest of hands be raised, sometimes by
> the same person for multiple categories, Park
> proclaimed "You are all in the sweet spot. There has
> never been a better time to be an innovator in Health
> and IT." Park says there are two trends that have
> really been locking in: Shifts in incentives, and
> information liberation.
>
>
> New Incentives: Meaningful Use
>
> Medicaid and Medicare are paying $40-60K to physicians
> to improve data capture and sharing, as well as
> outcome sharing through 2015. 100,000 providers have
> registered with HHS. While this is an exciting
> development according to Park, it is just the warm-up
> for rewarding the use of data and IT.
>
>
> Payment Reform: Affordable Care Act
>
> Historically, the payment system focused on a 'pay per
> visit' or 'pay per procedure' model. Lots of people
> would say this is dysfunctional, but I would say the
> system was doing what it was designed to do. We need
> to shift from pay for volume, to pay for keeping
> people healthy. This is being emulated across the
> private sector. Our biggest game changer, is the
> Center for Medicare and Medicaid Innovation (CMSI). If
> you care about this, this is the most important thing:
> go find out more about the innovation center at
> http://innovation.cms.gov <http:innovation.cms.gov>.
> This is a new center funded at $10 Billion to execute
> R&D on how CMS can pay for ways to improve costs and
> health. Most important is not the $10 Billion, but an
> obscure clause that says that if there is a new way to
> pay for care, if that is born out in data, the CMS
> office of the actuary's Secretary of Health and Human
> Services, has the authority to turn that into how CMS
> pays nationally. This is an objective scientific
> process to incentivize health care improvement. CMS
> has never had the authority to decide how it pays for
> care before in an objective and open process.
>
>
> Why is this exciting?
>
> If you look at patient centered medical homes, they
> take responsibility, reach out, and save complications
> and years in the hospital. It both educates AND takes
> care of you. This is what primary care physicians have
> wanted, but have been inhibited by costs. New care
> delivery teams and networks are emerging. We are
> moving past seeing more people and more rapidly (pay
> per volume), and expanding to proactive health patient
> optimization. People are analyzing information, and
> expanding the scope to include care coordination.
>
> *5% of patients account for 40% of medicare costs!*
>
> You've got to expand beyond the walls of the office,
> at home, and help doctors realize they have to come
> in. That notion of proactive patient health
> management, and engaging outside of the office will
> need to be done to succeed financially in the future.
> From a technology standpoint, how you do this can't
> be without data, and timely data, to integrate care.
> The ability to engage is based on datamining and
> analytics. This won't be just a 'ctrl+c, ctrl+v'
> process, but no new technology has to be invented, we
> just need to take lessons from other industries and
> apply it.
>
> * In a nutshell, this is an opportunity to
> reinstrument healthcare systems, and is the
> greatest entrepreneurial opportunity since the
> creation of the internet. This is a $3 Trillion
> industry*
>
>
> Information Liberation: rising patient data liquidity
>
> This is happening at multiple levels, but it does us
> little good if we move to electronic records, and
> patient data can't move from provider to provider. We
> need to turn manilla into electronic, but the data
> needs to move with the patient.
>
>
> The direct project
>
> Park told us a story about an email from a doctor that
> he received. The doctor said
>
> "I have a record for a patient, and that patient
> is going to another doctor. We have the same
> record, from the same company, but all I can do is
> print the record and fax it to the other doctor. I
> didn't think, and I emailed the record to the
> other doctor, and I understand now this is bad...
> Please help me with the basic networking problem."
>
> Park told that doctor that "we can help you, but we
> don't know the answer." In prior years, Park says in
> the past, the typical answer would have been "we'll
> appoint a commission, and come out 8 months later with
> an answer." We told him, says Park "We're confident we
> can crowd source a solution." An entrepreneur then
> opened a wiki, and within less than 3 months, HHS had
> a spec for secure health record emailing.
>
>
> BlueButton
>
> Another intresting project mentioned by Park was Blue
> Button <http://va.gov/bluebutton> launched by The
> Department of Veteran Affairs <http://va.gov>. This
> project enables veterans and military personnel to
> press a button and download their own health data.
> They didn't think it would be a big deal, and
> projected that 25,000 veterans would use the download
> service. Today, over 450,000 veterans and military
> personnel have downloaded their own data. We got calls
> from people within government asking "We're allowed to
> do that?" We said "yes," and it is infact legal. The
> fact that we did it sends a strong signal.
> Organizations like AETNA and United Health, as well as
> the States of Indiana and Vermont are now doing this
> same thing. BlueButtonData.org
> <http://bluebuttondata.org> explains how to do it, and
> where you can commit to joining the movement. HHS also
> announced a new clear rule in September to allow
> patients to get their own test results from laboratories!
>
>
> Increasing Market Transparency
>
> "What defines a market?" asks Park to the audience.
> "When a customer knows what choices there are, know
> their value, and can make choices. If this is a
> market, has healthcare really been a market before?
> Not so much, so we bring transparency. July 1st we
> launched Healthcare.gov <http://healthcare.gov>, which
> provides detailed vendor information for insurance,
> down to the zipcode level. This is important, and
> delivers better results."
>
>
> Health Data Initiative
>
> "This is something we are really excited about.
> Launched 20 months ago, this will turn us into the
> NOAA <http://noaa.gov> of health data!" proclaimed
> Park. The National Oceanographic and Atmospheric
> Association (NOAA) collects all weather data, and
> chooses to publish all the data in machine
> readable Free formats, for free. This has spawned
> innovation in private sector (the weather channel,
> apps, websites, etc...) and is a wonderful example
> of a symbiotic public/private relationship." When
> president Regan liberated GPS data, it paved the
> way for innovations like foursquare and others.
> *Take billions of dollars of data, and make it
> into fuel--open computable fuel--that
> entrepreneurs can turn into magic that help
> patients and doctors."* PDF's and books are
> useless. We're making API's and machine readable
> data. We also realized that 98% of innovators have
> no idea we had this data, and I've been marketing
> the bejeebus out of it all over the country."
>
> Park then went on to answer the question "What kinds
> of data are we liberating?" with the following list:
> o Community Health
> + 1200 metrics and indicators of performance
> at the national, regional, state, and
> local levels. (i.e. smoking and obesity rates)
> o Provider Directories
> + Medicare/Medicaid numbers, mental health
> providers, community health centers,
> meals-on-wheels, counselling, hospital
> quality, home quality, and many others.
> We've added API's for this to allow
> developer to link to and extract data.
> + Section 10332 is a provision that allows
> Medicare to make available detailed files
> to qualified private organizations and do
> research. This program will go live
> January of 2012.
> o BlueButton
> o FDA Recall Data
> o All products of healthcare.gov as a single
> downloadable file
> o National Library of Medicine <http://nlm.gov>
> + Clinical Trials
> + pillbox - API for a growing repository of
> tablets with pictures
> o Medline Plus - ecyclopedic information
> o Medical Connect - patient content broken down
> into individual diagnosis and drugs, that spits
> back an .xml package
> o Government Spending
> o
> o Claim files publicly available
> + Claim files have been redacted to ensure
> that data can not be rejoined with other
> datasets later
> "To track all of this, we have one site Healthdata.gov
> <http://healthdata.gov>; a one stop shop for all of
> our data. It is controlled access, so the blue button
> data is not here for example, but all of the FOIL-able
> data is catalogued on Data.gov <http://data.gov>.
>
>
> We publicize the heck out of our data
>
> o Health2Challenge.org <http://health2challenge.org>
> "Any company can launch a competition or
> code-a-thon, and I highly recommend going to one
> if you haven't yet. We've had several organized
> by health2challenge" explained Park, and then
> went on to describe one held at Georgetown
> University <http://georgetown.edu> where a team
> of Pittsburg students drove down and won the
> code-a-thon with their project "Food Oasis."
>
> Food deserts are places in America where you
> cannot get access to healthy food. They
> decided to solve this problem in eight short
> hours. They did a mashup of text messages
> and farmer's markets. You text in 'I want 5
> zucchini and 3 tomatoes" and the app will
> notify you of farmer's markets. They are
> testing in 7 cities, and I don't know if
> that idea, in that form will work, but it is
> their first. *What is exciting is that these
> 5 kids are now addicted to leveraging data
> to help.*
>
> I've founded many companies, but I've
> divested since. The thing I've learned
> is if you get the best people, you win.
> If you attract all of the best
> innovators in America into Healthcare,
> we can invent our way out of any problem.
>
> o Annual Health-data-palooza
> "Hosted by Secretary of HHS, our 2nd annual
> event will be June 9th. These are large
> scale festivals, open invitations to anyone
> who uses our data to help doctors, patients,
> or journalists. They also have to have a
> sustainable business model, (i.e. they can't
> try to show off a concept car that will
> never be built) and they have to be able to
> deliver to actual people. This is only 20
> months old, and has tough criteria, but even
> so, we had more people than were able to fit
> into our auditorium. We then did an
> 'American Idol' style virtual event, with
> judges to narrow down the field to the best
> 50. What I would say, if your faith is
> wavering in America, go to the Institute of
> Medicine website, search for 'health data
> initiative forum' and watch as many videos
> as possible. Let me describe a few:"
> + itriage
> # A company out of Denver, CO that
> makes powerful mobile and web
> tools. Early on, they took our
> directory and put it into their
> app. They now have 65 employees,
> over 3 million users, and they
> were just bought by AETNA, who
> is investing tons of capital for
> them to expand.
> + Healthline
> # Useful for healthsearch. If you
> have ever googled for heath
> advice, you know how dangerous
> it can be. Healthline ingests
> huge amounts of government dat,
> to make healthsearch more viable
> and accurate
> + Vitals.com
> Shopping services for consumers to
> + know quality and costs. PatientsLikeMe.com
> 120,000 patients voluntarily sharing
> information about their illness, which
> is integrated with clinical trails
> + data. They won datapalooza. Asthmapolis
> Single person team, a CDC
> <http://cdc.gov> veteran. Simple and
> brilliant idea to attach a GPS to an
> inhaler, to track where you have
> attacks. 80 patients tested it, and
> after several months, their usage of
> an inhaler more than 2 times per week
> dropped from 75% to 40%. This cuts
> costs by $3,000 per person. These were
> unscientific tests, with a small
> amount of people, but it is attracting
> a number of Angel Investors. Imagine
> doctors prescribing an asthmapolis
> device!
>
>
> Care providers providing better care
>
> + AETNA
> Cool app rollout, it wasn't even an
> app, but a nurse. Nurse 2.0. They
> built an IT cockpit for nurses, to
> help nurses help people better.
> Imagine a call center nurse, assigned
> to a patient with multiple illnesses.
> Demonstrated how a nurse can pull up
> various pieces of government data, to
> be a more omniscient care provider.
> 'Here are the nearest community health
> centers' and other data customized to
> help each patient, delivered through
> the most effective user interface:
> talking to another human being.
> Application of data is at any level
> that helps people make better
> decisions to improve health and
> + healthcare. Doximity
> They use government data to build a
> GPS map of all providers in America.
> You can use that data set, as a
> doctor, to figure out who to refer
> patients to, and even integrates text
> + messages. Essence Group/Lumaris
> + Press Ganey
> + Rise Health
> + ElizaLIVE
>
>
> Communities Improving Healthcare
>
> + Ozioma
> Built by a team of University of
> Washington St. Louis students, it is
> virtually free for bloggers and
> journalists. It takes 98% of the work
> out of raising public awareness.
> Journalists can't afford their own
> health services researchers, and
> Ozioma directly categorizes stories
> about disparities in health to help
> mobilize action.
>
> HHS didn't pay for, or coordinate
> any of this stuff. We just put out
> data, publicize it, and folks like
> you dive in and kick butt! You
> leverage your talent and build
> amazing stuff. In just these 50
> innovations, no one or even ten
> companies could not have /thought
> of/ all of these ideas, let alone
> /built them/.
>
> + Walgreens
> announced they are going to install
> people to be "health guides," or free
> health concierges. Walgreens wanted to
> build an IT cockpit for these guides,
> so they issued a challenge and got 50
> submissions in about 90 days, and
> chose one startup to equip them. The
> first 16 installations are happening
> + in Chicago as we speak. Startup Health
> A combination of a seed accelerator
> and incubator, they will help start
> 100 companies over the next 10 years.
> Venture Capitalists are very
> efficient, but incubation systems for
> healthcare companies is very
> hap-hazard. Organizations like Startup
> Health, fill this gap, and help
> startups find support, through a
> + rolling applications process. Health
> Data Consortium
> Launched as a new private/public
> partnership through the Robert Wood
> Johnson Foundation <http://rwj.org>,
> they have hired a small cadre of
> health data evangelists. These are the
> Johnny and Jane Appleseeds of Open
> Data who walk the ground, run
> datapalooza, and expand the scope and
> breadth of health data.
>
> Our goal is to not only expand the data,
> but catalyze the ecosystem of innovators
> who will create the jobs of the future.
> I'd love to get to know you, and see how
> we can help you. If we can't connect
> here, please contact me at
> todd.park at hhs.gov
> <mailto:todd.park at hhs.gov>
>
>
> Q: What are you thinking about
> when you say we have all the
> technology?
>
>
> A: I didn't mean that electronic
> health records can do all this,
> or that healthcare itself has
> all the tech. In the world in
> general, the tools exist, and it
> is feasible to be applied. Has
> it been done yet? No.
>
>
> Q: Is location based data like
> asthmapolis being shared with
> city planners and other public
> officials?
>
>
> A: Patients have to opt-in, but
> they have done some preliminary
> work like this, crowdsourced at
> the community level and combined
> with sensor data.
>
>
> Q: How do you like working in
> the biggest bureaucracy in the
> world?
>
>
> A: I love it. I can't get enough
> of it. I don't have a background
> in government, and when they
> contacted me, I said 'I don't
> know anything about politics or
> government' and they said
> 'Great! It's an entrepreneur in
> residence position to lead big
> initiatives' If you work in the
> Federal Government, and you have
> an idea, here is my advice; Find
> 3 or 5 other people who had the
> idea a long time ago, who know
> how goverment works, and stitch
> them together in a virtual
> startup team. Give them
> permission to do the things they
> want to do, and things rapidly
> get done. The thing that
> distinguishes top entrepreneurs
> is they /believe/ in what htey
> are building. Leaving a legacy.
> Leaving their mark. Making the
> lives of their grandkids better.
> That is what is required to deal
> with the craziness and to make
> change, in the public or private
> sector.
>
>
> Q: What would happen if we were
> to innovate our way into a more
> proportionate amount of GDP into
> "per patient services?"
>
>
> A: People talk about going from
> that 2.5 to 1.5 (trillion
> dollars), and they talk about
> changing growth rate. I don't
> have a problem with spending 20,
> 30, 40 percent on healthcare.
> What I do have a problem with is
> large portions of that spending
> being wasted. It is up to
> society to decide how much to
> spend on healthcare. Nobody
> thinks we are getting our
> money's worth. I talk to primary
> care doctors, and ask "can we
> get more for what we spend?" The
> laugh and say "of course, but
> our system is not geared toward
> keepign people healthy." I focus
> on return on investement.
>
>
> Q: What is the process for our
> students at RIT and the Upstate
> Community to participate in one
> of the hackathons you mentioned?
>
>
> A: I have 2 anwers: 1) go to
> health2challenge.org and
> challenge.go and you can see the
> challenges happening all over.
> 2) If you want to do your own,
> we'd love to help. We can
> collaborate with you, and I'd
> love to come if I can. One thing
> we have learned from running
> these kinds of events is that
> you need both IT/Data/Dev folks
> AND healthcare folks in the same
> room. Otherwise devs spend time
> learning basic things. That
> intersection is important, if
> schools of public health and
> medicine got involved, it could
> be very interesting.
>
>
> Q: What is your fundamental message?
>
>
> A: Never has there been a better
> time to start a company at the
> intersection of data, health,
> and IT. Information is being
> liberated at an epic scale.
>
> *Never has there been a better
> time to start a company at the
> intersection of data, health,
> and IT. Information is being
> liberated at an epic scale.*
>
> Thank Dr. West for that
> introduction, and Elizabeth for
> organizing this. We started this
> conversation at SXSW. I'm just
> hearing about all of things
> happening in health and
> entrepreneurship. I don't want this
> to be a formal "speechification"
> process. Let me start with Qs: Who
> has background in HealthCare? Who
> has background in IT or Data
> Student? Tech Dev? Researcher Doctor
> Nurse Healthcare Management and
> administration This gives me a good
> sense of who is here, and it looks
> like you are all in the sweet spot.
> There has never been a better time
> to be an innovator in Health and IT.
> 2 trends are locking in: shift in
> incentives information liberation
> rocket fuel for innovation New
> Incentives: Meaningful Use
> Medicaid/care paying 43K-60K
> physicians to improve data capture
> and sharing, and outcome sharing,
> through 2015. 100,000 providers
> registered with us. While this is
> exciting, and builds a biz case for
> health IT, it is just the warmup
> appetizer, that rewards the use of
> data IT. Payment reform - Affordable
> care act Historically, pay per
> doctor visit, per procedure. Lots of
> people would say this is
> dysfunctional, but is doing what it
> is designed to do. Exponential
> growth in health and quality health.
> We need shift from pay for volume to
> pay for keep people healthy. Being
> emulated across prviate sector.
> Biggest game changer, cener for
> medicare and medicaid innovation. if
> you care about this, this is the
> most important thing: go find out
> more about the innovation center
> innovation.cms.gov? new center
> funded by 10Bil to executre RD, on
> how CMS can pay for ways to improve
> costs, and health. Most important is
> not the 10Bil, an obscure clause, it
> says that if there is a new way to
> pay for care, if that is born out in
> data, the CMS office of actuary, the
> sec of HHS, has the authority to
> turn that into how CMS pays
> national. Objective, Scientific
> process to incentive health care and
> improvement. CMS never had authority
> to decide how it pays for care. This
> is an objective and open process.
> Why is this exciting? If you look at
> Patient centered medical homes,
> takes responsibility, reaches out,
> saves complications and years in the
> hospital. Educates and takes care of
> you. This is what primary care
> physicians wanted this, but this
> push for primary care was inhibited.
> Clinical depression is on the rise.
> Bundled payments, etc... new care
> delivery teams and networks
> emerging. Move past seeing people
> more and more rapidly, but expand to
> proactive health patient
> optimization. Analyzing information.
> Expanding the scope to include care
> coordination. 5% of medicare
> patients accoutnf ro 40% of medicare
> costs!!! What is the coordination
> efforts like? YOu can't, you'll go
> bankrupt. Doctors are being paid to
> optimize and coordinate with other
> doctors, to do this holistically.
> 75% of spending is on illness(not
> sure) YOu gotta extend beyond the
> walls of the office, at home, and
> help them realize they have to come
> in. That notion of proactive patient
> health management, and engaging
> outside of the office, will need to
> be done to succeed financial. From a
> tech standpoint, how you do this,
> can't be without data, and timely
> data, to integrate care. Ability to
> engage is based on datamining and
> analytics. if I were to give this
> talk to another industry, it would
> sound like space age stuff. No new
> tech has to be invented, we just
> need to take lessons from other
> industries and apply it. It is not
> just a ctrl+c and ctrl+v process. In
> a nutshell, this opportunity to
> reinstrument healthcare system, is
> the greatest entrepreneurial
> opportunity since internet. 3
> Trillion dollar industry. People who
> raised their hands for tech, health,
> data, and entrepreneurship, this
> could be the best time to be alive.
> Q: What are you thinking when you
> say we have all the tech? I didn't
> mean electronic health records can
> do all this, or that healthcare has
> all the tech. In the worl din
> general, the tools exist, and it is
> feasible to be applied. Has it been
> done yet? No. the EHR's are like the
> 1890's. It is not clear what the
> mode of the tech people will move
> to, but the runway. There is still
> time to innovate. Q: How would you
> incentivize all these people to
> communicate with eachother?
> Basically, it's not my goal to
> microengineer more fees for service,
> Kaiser, or intermountain company,
> they have total accountability. They
> do the "stitch in time" to save
> hospitalization. Built a massive
> database, and quality outcomes
> better, and lower costs than
> anywhere in america. They still have
> a long way to go. Orgs do what they
> are paid to do, and the current
> system does not reward care orgs. If
> you shift to a system where care
> coordination is essential, hopefully
> over time or rapidly, processes and
> people will optimize. There is a
> long way to go. If I were telling
> you the problem is solved, it would
> be much less exciting. there is a
> market now. I can testify to you,
> from being the manager, to building
> a company that builds software,
> innovation is the systematic... even
> if people want to innovate they
> can't. This will make babies
> healthier and mom's happier. Folks
> like me, back in the day, had ideas
> and we had a chance, because the
> incentives are being stacked in our
> favor now. It is a huge opportunity.
> Ther eare use solutions being
> developed. Infomraiton Liberation:
> rising patient data liquidity The
> direct project Happening at multiple
> levels. Doesn't little good if we
> move to e-records, but patient data
> can't move. If it isn't able to move
> from provider to provider, it makes
> it more difficult. We need to turn
> manilla into electronic, but the
> data needs to move witht he patient.
> Direct projec,t launached a year and
> ahalf ago, the HHS is not your
> father and mothers hhs. This story:
> a doctor came to one of our meetings
> and said I know you are having
> powerful thoughts, but I have a
> record, and a patient going to
> another doctor. We have the same
> record, from the same company, and
> all I can do, is print the record,
> and fax it to the other doctor. I
> didn't think, and emailed the
> record, and I understand that that
> is bad... help me with the basic
> simple networking problem. We said,
> well we can help you, but we don't
> konw the answer. In prior years,
> we'd say "we'll appoint a
> commission, and they'll come out 8
> months later with the answer" We
> said, we're confident we can crowd
> source it. Entrepreneur opened a
> wiki, and less than 3 months, had a
> spec for secure health record email.
> 95% of record companies want to
> participate. Blue button: Another
> interesting project, luanched by Vet
> affairs, enables millions of vets
> and soldiers to hit a blue button
> and download your own data. We
> didn't think it was a big deal, but
> the VA projected that 25K vets would
> download... today 450K vets and mils
> have downloaded. We got calls from
> people, asking "We're you allowed to
> do that?" "Are you allowed under
> HIPPA, to allow people to download
> their own records" We said yes, and
> it is infact legal. The fact that we
> did sneds a strong signal. Orgs like
> AETNA and United health, Indiana,
> and Vermont are now doing it.
> BlueButtonData.org explains how to
> do it, and where you can commit to
> joining the movement. HHS announced
> a new clear rule, in sept. to allow
> patients to get their own test
> results from labs! Increasing market
> transparency What defines market?
> Customer knows what choices are,
> know the vlaue, and can make
> choices. If this is a market, has
> healthcare been a market before? Not
> so much. We bring transparency. July
> 1st we launched healthcare.gov,
> provides detailed vendor information
> for insurance down to the zipcode.
> This is important delievers better
> results health Data initiative Heard
> of it? This is something that we are
> excited about, luanched 20 months,
> turn us into the NOAA of health
> data. NOAA collecgts all weather
> data, and chooses to publish all the
> data in machine readable free
> formats, for free. Spawned
> innovaiton in private sedctor,
> (weather channel, apps, etc...)
> Wonderful example of symbiotic
> public/private relationship. When
> regan liberated gps data, paved way
> for foursquare and other
> innovations. Take billinos of $ of
> data, and make it into fuel, open
> computable fuel, that entreprenuers
> can turn into magic that help
> patients and doctors. Making
> existing data more accessible pdf
> and books are useless. We're making
> api's and machine readable data.
> Realized that 98% of innovators, had
> no idea we had this. We've been
> marketing the bejeebers out of this
> data. What kinds of data are we
> liberating? Community health
> indicators, 1200 metrics of
> performance, national regional local
> and state. smoking obesity rates,
> etc... Provider directors medicare
> medicaid numbers, mental health
> providers, community health centers,
> meals on wheels, counseling,
> hopsical quality, home quality,
> etc... we added API's for this to
> allow developers to link and extract
> data. section 10332 provision that
> allows medicare to make available
> detailied medicare files to
> qualified private orgs, and do
> research. Goes live Jan 2012. Blue
> Button FDA Recall data Products of
> healthcare.gov available as single
> download NLM clinical trials,
> pillbox - api growing repo of
> tablets Medline plus encyclopedic
> informaiton Medical connect patient
> content borken down into individual
> diagnosis and drugs "spits back an
> xml package, a packet" like having
> NLM plugged into your iphone for
> free Goverment Spending Claim files
> public available Redacted claim
> files to ensure you can't rejoin the
> data later To track all this, we
> have one site healthdata.gov. One
> stop shop for all of our data. It is
> controlled access, the blue button
> data is not here. All the foilable
> data is catalogued on data.gov On
> top of that, we publicize the heck
> out of our data. working with
> health2challenge.org any company can
> launch a competition or code a thon.
> Highly recoommened going to a
> code-a-thon. Several organize dby
> health20 pittsburg students won
> codeathon at georgetown food oasis
> Food deserts are where in america
> you can't get access to healthy
> food. They decided to solve this
> problem in 8 hours. They did a
> mashup of text messages and farmers
> markets. You text in "i want 5
> zuccini and 3 tomatoes" and it
> notifies you of farmers markets. I
> fyou don't demand in advance, and
> there is no inventory, the cost of
> food drops dramatically. They are
> testing in 7 cities, and I don't
> know if that idea in that form will
> work, it is their first, but what is
> exciting, is that these 5 kids are
> addicted to leveraging data to help.
> Founded many companies, but I've
> divested since. The thing I've
> learned is if you get the best
> people, you win. If you attract all
> of the best innovators in america
> into healthcare, we can invent our
> way out of any problem. Annaul
> Health data palooza Hosted by
> Secretary, our 2nd annual one June
> 9th. Large Scale festivals, open
> invitations to anyone who uses our
> data to help doctors, patients,
> journalists. They also have to have
> a sustainable biz model. They have
> to be able to deliver to actual
> people. This is about 20 months
> onld, and is a tough idea. Even with
> these tough criteria, we had more
> people than could fit into our
> auditorium. We did an "american idol
> style" virtual event, to narrow down
> with judges to the best 50. What I
> would say, if you faith is wavering
> in america, go to the institute of
> medicine search for health data
> initiative forum and watch as many
> videos as possible. Let me describe
> a few: Help cosnumers take control
> of their own health, by giving them
> their own data. I-triage, co out of
> Denver. opwerful mobile/web tools.
> early on took our directory and put
> it into their app. 65 employees,
> 3million users, just bought by
> aetna, tons of capitoal to exmpand
> healthline useful for healthsearch,
> ingests huge amounts of gov data, to
> make healthsearch more viable and
> accurate vitals.com shopping
> services for consumers to know
> quality/cost Patientslikeme.com 120K
> patients voluntarily share info
> about their illness integrated with
> our clinical trials.gov data, won
> the datapalooza asthmapolis single
> person, cdc vet. SImple and
> brilliant, attach a gps to an
> inhaler, to track where you have
> attacks. 80 patients did it, after
> several months, dropped from 75% to
> 40%, use of inhaler more than 2
> times per week. Cuts costs by $3K
> per person. Unscientific tests,
> small people. Attracing angel
> investments. imagine doctors
> prescribing an asthmapolis device!
> Under HIPPA, it is covered, they
> care compliant, and they have been
> cleared with FDA. Is location based
> data being shared with city planners
> and other public officials? Patients
> have to opt-in, but they have done
> some preliminary work like this.
> Crowdsourced at community level,
> combined with sensor data. Care
> providers provide better care Aetna
> cool app rollout, it wasn't even an
> app, but a nurse. Nurse 2.0. They
> built an IT cockpit for nurses, to
> help nurses help people better. Call
> center nurse, assigned to a patient
> with multiple illnesses.
> Demonstrated how nurse can pull up
> various pieces of gov data, to be a
> more omniscient provider. Here are
> the nearest community health, meals
> on wheels, etc.. customized help for
> patient, delievered through the most
> effective user interfaces: talking
> to another human being. I love
> iphones, but that is too narrow.
> Application of data is at any level
> that helps people make better
> decisions to improve health and
> healthcare. Essence Group/Lumaris
> Doximity Communication, speaking of,
> interesting solution. They use gov
> data to build a gps map of all
> providers in america. You can use
> that data set, as a doc, to figure
> out who to refer patients to, and
> even use text message. I was talking
> to Jay Walker, founded priceline,
> the thing about social netowrking,
> enables people to mass communicate
> at zero marginal cost. Simultaneous
> mass communication with social media
> and mobile. Press Ganey Rise health
> ElizaLIVE Communities improve
> healthcare Policy maker can change
> strucutre of policy or neighborhood.
> Ozioma built by team of UWashington
> St. Louis. Vritually free for
> bloggers/journalists, takes 98% of
> work out of raising public
> awareness. Journalists can't afford
> their own health services
> resaerchers. Youc an directly
> categorize stories disperities in
> healht, and mobile action. ESRI HHS
> didn't pay for, or coordinate this
> stuff. We just put out data,
> publicize it, and folks like you
> dive in a kick butt! You leverage
> your talent and build amazing stuff.
> Just these 50 innovations, no one or
> ten orgs could have thought of all
> these, let alone built them.
> Walgreens announced they are going
> to install people to be "health
> guides." done in chicago already.
> Free health concierge. Wnated to
> build an IT cockpit for this guy,
> and they issued a challenge and got
> 50 submissions in about 90 days, and
> chose a startup to equip them. First
> 16 installations happening in
> chicago as we speak. Consumer health
> informatics build more people who
> can build this stuff Startup health
> combination of a seed excellerator
> and incubator, help start 100
> companies over next 10 years. VC is
> very efficient, but incubation
> system for healthcare companies is
> very hap-hazard. These folks can't
> find the support, but this org helps
> alleviate that. Rolling applicaitons
> to get support. Health Data
> Consortium Launched a new pri/pub
> partnership, robert wood johnson
> foundation Hire a small cadre of
> halth data evangelists Run
> datapalooza expand scope and breadth
> goal not to only expand the data,
> but catalyze the ecosystem of
> innovators. New Incentives +
> Information Liberation = Rocket Fuel
> for Innovation & Progress I'd love
> to get to konw you, and see how we
> can help you. If we can't connect
> here, contact me at
> todd.park at hhs.gov I'm continually
> haunted by change of a complex
> system. Inputs don't affect outputs
> in a linear way. One of you will be
> the butterfly that flaps it's wings
> that changes healthcare. HHS in some
> small way can help you. You are part
> of a broader movement. I spend alot
> of time on the road, talking to
> thousands of innovators, and what
> hundreds of them have already done.
> More walking than talking. they have
> already built stuff, that can
> revolutionize healthcare in tangible
> ways. Innovators from all sectors,
> our job is to help you. Thank you
> for all you've done already. Thank
> you for everything you've done. God
> bless you, may the force be with
> you, and god bless america. Where
> can we get a copy of this
> presentation? Feel free to take it.
> How do you find working in the
> biggest beureuacracy in the world? I
> love it. I can't get enough of it. I
> don't have any background in gov.
> When they contacted me, I said I
> don't know anything about politics
> or gov, and they said Great! "It's
> an entrepreneur in residence, to
> lead big initiatives" If you work in
> the FEd gov, if you have an idea,
> you first find 3 or 5 other people
> who had that idea a long time ago,
> who know how gov works, and you
> stitch them together in a virtual
> startup team. Give them permission
> to do the things they want to do,
> and they rapidly get things done. I
> get calls from my friend on the
> outside asking "do you have to fill
> out forms to go to the bathroom?"
> But I love what I do. The thing that
> distinguishes top entreprenuers is
> they believe in what they are
> building. Leaving a legacy. Leaving
> their mark. Making the lives of
> their grandkids, better. That is
> what is required to deal with
> craziness, to make change, in the
> public or private sector. I can't
> stress enough. Even when it has been
> brutal. If we were to innovate our
> way into a more proporitionate
> amount of GDP into 'per patient'
> what would happen? People talk about
> going from 2.5 to 1.5, they talk
> about changing growth rate. B, I
> don't have a problem with spending
> 20-30-40 percent on healthcare. I do
> have a problem with large portions
> of it being waste. it is up to
> society to decide how much to spend
> on healthcare. nobody thinks we are
> getting our monies worth... I talk
> to primary care docs, and ask "can
> we get more for what we spend?" They
> laugh and say of course, but our
> system is not geared toward keeping
> people healthy. I focus on return on
> investment. FDA entreprenueriship in
> residence Launched a month ago, team
> asigned the job of redesigning how
> FDA designs breakthroughs...
> Previous to this process, they are
> now looking at total end-to-end
> cycle time, cut down time, and
> impact safety. They are not sticks
> in the mud. go to
> health2challenge.org and
> challenge.gov you can see the
> challenges happening all over. We
> love to get the word out. If you
> want to do your own, we'd love to
> help. WE can collaborate with you,
> I'd love to come if I can. One thing
> we learned, you need both IT data
> dev folks and health care folks in
> the same room. otherwise devs spend
> time learning basic things. That
> intersection is important, if the
> school of public health/medicine and
> others sponsored it, it could be
> interesting. NAE and NLM Schools of
> engineering and health encouraged in
> a college bowl type hackathon.
> Fundamental Message: Never been a
> better time to start a company at
> the intersection of data, health and
> IT. Information is being liberated
> at an epic scale.
--
Jason Hibbets, RHCSA :: Twitter: @jhibbets
Project Manager, Red Hat :: Raleigh, NC
Open source is changing the world -- http://opensource.com
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