What happens when two brain cancer patients decide to take their futures into their own hands?
Steven holds a Ph.D. in mechanical engineering from the Massachusetts Institute of Technology. After volunteering to have an MRI done as part of a scientific research project, they discovered a brain tumor. Since then, he?s advocated for sharing health data, including his brain scans.
Liz Salmi is a healthcare communications professional based in Sacramento, CA who dubs herself "the open source patient." After a powerful seizure, Liz learned that a mass was growing in her brain, and she was diagnosed with Gemistocytic astrocytoma. She created her blog The Liz Army to share her experiences with brain cancer with the world, to support those going through similar experiences, and to advocate opening up health data.
OpenNotes is a national initiative to give patients access to the visit notes written by their doctors and nurses. Since 2010, it has grown from 100 doctors to thousands, and from 20,000 patients to 10 million.
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